Thursday, November 17, 2011

Three Years Later (Updated with more pictures)

Last year, in my “Two Years Later” post, I said that I would be ecstatic if I were able to write a “Three Years Later” post.  Well here we are, three years later.  And although I’m thankful that Isabella is still with us, I wouldn’t necessarily say that I’m ecstatic.  It’s very difficult to see Isabella in her current state, hardly able to move or talk.  It’s not fair for a child to go through what she’s going through.  Sometimes I question whether we are trying to prolong her life for her benefit or selfishly for our own benefit, and whether the treatments are worth it.

I’ll close out this brief post with a profound quote I recently came across.  It really hit close to home:

We must be willing to let go of the life we planned, so as to have the life that is waiting for us. – Joseph Campbell


Updated:  10:18pm

So Isabella actually had a pretty good day today.  She had a visit from a therapy dog which she always enjoys.  She then went and swam at the pool at the Y.  Now of course she doesn’t actually swim, but just sort of floats around the pool, but it still has to make her feel better since the water help support her weight.

Isabella hasn’t had much too smile about lately, so we haven’t taken many pictures, but we got a couple today.  Notice Isabella’s hair growing in nicely and her chubby cheeks!  This is us living our life that is waiting for us! 


Also, here’s a picture of Charlie, hard at work at school for Isabella!

charlie at school

Monday, November 14, 2011

November 13 Update

Isabella has continued to weaken over the last week or so. She can no longer go up and down steps and can only walk a few steps at a time. Her speaking has also become much more labored as she can only get out single words and those are typically hard to understand. She also no longer has any energy to go to school, so she just sits at home and watches TV. It is very difficult to get her out of the house, but we try to even just to get her a bit of exercise and fresh air.

We've started getting ready for Christmas at our house, but at this point, it's looking to be a pretty somber, if not completely tragic Christmas.