Thursday, November 17, 2011

Three Years Later (Updated with more pictures)

Last year, in my “Two Years Later” post, I said that I would be ecstatic if I were able to write a “Three Years Later” post.  Well here we are, three years later.  And although I’m thankful that Isabella is still with us, I wouldn’t necessarily say that I’m ecstatic.  It’s very difficult to see Isabella in her current state, hardly able to move or talk.  It’s not fair for a child to go through what she’s going through.  Sometimes I question whether we are trying to prolong her life for her benefit or selfishly for our own benefit, and whether the treatments are worth it.

I’ll close out this brief post with a profound quote I recently came across.  It really hit close to home:

We must be willing to let go of the life we planned, so as to have the life that is waiting for us. – Joseph Campbell


Updated:  10:18pm

So Isabella actually had a pretty good day today.  She had a visit from a therapy dog which she always enjoys.  She then went and swam at the pool at the Y.  Now of course she doesn’t actually swim, but just sort of floats around the pool, but it still has to make her feel better since the water help support her weight.

Isabella hasn’t had much too smile about lately, so we haven’t taken many pictures, but we got a couple today.  Notice Isabella’s hair growing in nicely and her chubby cheeks!  This is us living our life that is waiting for us! 


Also, here’s a picture of Charlie, hard at work at school for Isabella!

charlie at school


  1. Hi Isabella,love that big smile!!!There's a ton of
    people praying hard for you and your family every time.Wish you the best,sending you lots of love and hugs!!!God bless you all.

  2. Dear Isabella,
    Prayers are always with you! I miss you and speak of your courage and grace with the children of my new Parish. May you have a beautiful Thanksgiving and enjoy the incredible love of your Parents, brother and sister and family!!! God bless you, Pat Postiglione

  3. My prayers and thoughts are with you and your family, Isabella. you are a very courageous girl and a role model for all of us. I am sick too and you give me strength and courage.


Feel free to leave a message for Isabella.