Tuesday, May 8, 2012


Isabella seems to be tolerating the feeding tube a little better in the last 24 hours.  She is not as raspy and labored as she breathes.  Of course, Julianne and I still listen closely and carefully through the night as Isabella sleeps to hear any oddness or disruptions.  It makes for some long nights, but there really is no other choice at this point.  Isabella has also tried solid foods, although very little, which is the first time since last week that she's tried solids.  She had some problems swallowing, but that is expected since she basically didn't have to swallow anything since she got the feeding tube.

Here is a picture of Isabella sitting out on our deck yesterday, enjoying the warm weather.  She had just received the beautiful flowers from her special friend.

Finally, here is a music video that a special kid made undergoing cancer treatment in Seattle. It's a little difficult for me to watch since it gives me flashbacks of walking around the pediatric floor at NYU, but maybe it will fill you with some inspiration and additional awareness.

Thanks for reading.


  1. Isabella, I have heard that you are a beautiful, intelligent and amazing person. I enjoy hearing about your progress. I want to wish you all the best and lots of love. From Emma, Nina, Stella and Rick, on the other side of Norwalk!xxx

  2. I am glad to hear that Isabella is tolerating her feeding tube. I also would like to thank you for keeping us posted on her progress. I will continue to keep you all in my prayers.

    Katie Vasquez

  3. Good to see you all out and about at NHMS Night Thursday. Happy Mother's Day to Julianne, she is an inspiration to all of us moms. Hope you all have a beautiful and restful day. Love to all.

    Marybeth Darcy

  4. Always thinking of you and Isabella... always praying for her strength and comfort....Love you guys...
    Alice from Camp


Feel free to leave a message for Isabella.